Sunday, October 3, 2010

The sunshine after the storm

I really feel like finally the clouds have shifted on our run of bad luck with Xavier's health, and the sun is now peeking through. He had his second eye surgery on Weds just gone (the 29th) and it has so far been a success. You might remember we thought one of the muscles had popped its stitching from the first surgery and was now lying unattached somewhere behind the eye. Xavier did not have his full range of eye movement and was quite obviously struggling to see. The surgeon was expecting a big invasive operation where he would have to go in behind the eye and try to find this muscle in amongst everything, pick it up, rework it and attach it. I was also concerned about the reaction he had after waking from the last surgery. He was very difficult to rouse and I had a nervous hour long wait while I waited for him to stir. For about 36hrs after the surgery I felt he was extremely groggy and not "with it". They assured me he was fine and that it would pass which it did. I just felt it was a very extreme reaction.

This time we had a different anesthetist and I spoke to him about my concerns. He looked at Xav's records and said he thought it was unlikely that the anesthetic had caused the prolonged grogginess. He thought it was more likely that the pain relief he was given during the surgery (which happened to be morphiene) was the culprit. So they did the surgery using a different drug and sure enough he pulled through just fine, woke up properly and recovered at home a lot better and a lot quicker. So obviously he had quite a strong reaction to morphiene.

As for the surgery itself it went wonderfully. When the specialist got in there he saw that the muscle we thought was unattached was actually right where it was supposed to be. All that had happened was another muscle that was worked on in the first surgery had healed funny. It had formed a huge heap of scar tissue which was so big that it had jammed the eye into the wrong position. We were thinking Xav couldn't move his eye because the muscle was not there to move it, but all that was happening was that it was caught and being held in the one position. All the doctor had to do was take away the scar tissue and that was it. We now have a much straighter eye, and a much happier little boy. All resulting from a surgery that was nowhere as big as we thought it would have to be. It is a fantastic relief.

We see the doctor for post operative check on Oct 20 but already I can see a big improvement in the eye and in my son all over. You all might remember that Xavier has been very behind on his motor skills because his vision has been lacking? He is turning 2 in Jan and has been seeing a baby physio because he still isn't walking. Well the day after the operation he just all of a sudden took off and started walking, and has been doing really well. We are overjoyed. Thanks so much for everyone's prayers they have obviously helped so much. And sorry this post is late - I have been laid up with a cold and have been taking things easy. I'll post again soon.
Love to all xoxoxoxo